Reggie has been on the ketogenic diet for over 6 months and as you can see by this blog, It has NOT been a good 6 months. We will give him a trial on a regular diet. If his seizures increase we will have to consider returning to the ketogenic diet. We are also interested in trying Trehalose (type of sugar). Trehalose can't be used with the ketogenic diet.
Trehalose has shown improvements in disorders similar to DRPLA. See article. By copy and paste the below link.
http://db.tt/wIKxPTeY
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