On and off all day Reggie has been in pain. At first simethicone (for gas pain) was helpful. But it stopped helping. Plum met. 20m seemed to help with little seizures but nothing for the pain. Gave a combination of Prevacid and simethicone.
It also appears recently the ataxia is getting worse. Medication increase or VECTOR, or just progression of disease
:-( hang in there Reggie.. <3
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