Grandmal seizure

After Over 24 hours of nonstop monoclonic seizures, I began giving his homeopathic remedy every 15 minutes. Oenathe crocata 200c. After the fifth dose he had a Grandmal seizure. Reggie also has diarrhea and a low grade fever 99 axillary. The 2nd. Grandmal seizure at 3:45.

Couple new things to document today. About 30 seconds after some Grandmal seizures he startle/fearfully screams very loud. He also sometimes has decererbrate posturing after Grandmal seizures.

Also something. Very new in the last 24 hours is Reggie has been sweating. He abnormally never use to sweat.

Also I have been applying coconut oil to his rash and it has improved drastically.

Bad day.

Something is changing. Reggie has been having hard monoclonic jerks all day, but he is very alert. The alertness is good, but he gets upset at the jerking. His betahydroxy (BOH) blood ketone level was 2.0 today. He is jerking so hard I don't know If he will get to sleep.

After about 15 minutes of sun today Reggie broke out in a rash on his back. The rash looks like shingles. I put coconut oil and eucalyptus and it appears to be drying up.

6 Grandmal seizure

Reggie has had 4 bad days. 2 really bad with 6 grandmals and multiple monoclonic seizures. He is at Miami Children's Hospital. Started the ketogenic 2:1 Monday and today has a beta hydroxy (bl. Ketone level) of 1.6. They won't let us feed him by mouth until he passes a swallow test. Which has been rescheduled twice.

Checked in at Miami Children's

Little disappointed. They won't be officially starting the diet till tomorrow. Lots of tests to make sure his body can handle the diet. Also tomorrow they will do a video fluoroscope to see if he is aspirating his food. If he is, he will have to be 100% tube feed. That would be depressing for us, and upsetting for Reggie who enjoys eating.

Good day.

Reggie had a great day today at school and therapy. Yesterday we had our appointment with the ketogenic team at Miami Children's Hospital. Reggie will be admitted Monday for 3-5 days to start the diet. They have already started decreasing his meds. Down on the topamax every 3 days.

5 Grandmal seizures.

Very bad day. 5 Grandmal seizures. Unresponsive all day. Gave several remedies and tried to stay on high fat. :-(

2 good days

Reggie is staying on the same pattern. He had a really good weekend. Swimming and playing. Good appetite and no seizures. In the middle of the night, he started with seizure activity. Started giving. Oenathe crocata 200c. He also woke this morning pretty shaky. Gave a total of 5 doses OC 200c and he did go to school, but he wasn't so good