Sunday, April 29, 2012

Grandmal seizure

His day had been improving. He went to sleep around 9pm. Had a Grandmal seizure at 12:30am. :-(

Pancreatitis/gastritis/Ulcer

The last 30 hours has been challenging. Reggie started crying since 1am saturday morning. It appears to be pain like when the doctor thought he was recovering from pancreatitis. (amylase 137) Yesterday gave Pepcid AC he was feeling better. At night he wouldn't sleep crying. Gave Prevacid 30mg. Went to sleep. He woke up ok. Ate a BIG breakfast. Now he has started crying again. Without diagnostic testing appears to be GI. Deciding what to do???

Wednesday, April 25, 2012

Reggie on his 5th piece of pizza

Today is a good day. Reggie went to school. He is home doing his electrical stim machine. (VECTOR) and eating lots of Gluten Free Pizza. No NFP therapy tonight. Many of his Reggie addicts have completed nursing school and I am attending their pinning ceremony. Today Reggie will get a total of 4 doses of Plum Met. 20m.

Tuesday, April 24, 2012

Talked with Dr Andre Saine.

Dr. Saine is Reggie's "internationally known" homeopathic doctor in Montreal Canada. He still thinks Plum met is Reggie constitutional remedy. His prescription is to take plum met 20m every four hours while awake. We are starting it this afternoon. Today was a recovering day. Reggie slept a lot. He did eat and interact.

Monday, April 23, 2012

3 good days

Reggie had 3 good days. Friday Saturday and Sunday. Sunday afternoon he started with lots of little seizures.

Thursday, April 19, 2012

Recovering

Reggie had a rough day yesterday and he is still recovering. No seizures today. He slept most of the day. Tried to give a Plum met 20 to get him functioning, it didn't seem to help. But did wake up to eat in the afternoon. Right now, He is watching TV with dad while on his electric stim machine.

Wednesday, April 18, 2012

Had to start neurontin

Well today was a complete wash. Even after 3 doses of Plum met 20m Reggie had 5 grandmal seizures, and lots of seizure activity. Since decreasing the lamictal to 100mg twice a day his seizure pattern has returned to 3-6 seizures every 3rd day. Obviously that is unacceptable so we started neurontin (gabapinton) 300mg three times a day. I am sure after therapy and a good night sleep, Reggie will be good to go.