Post surgery

Today is second day post op and Reggie is still in a lot of pain. He has been getting 0.3mg of morphine every 6 hours. Surgery hasn't cleared him to be feed. He is resting.

No Dilantin. Yes depakote

Reggie has had significantly more brief and generalized seizures on Dilantin. Although the actually number of Grandmal seizures slightly decreased. Reggie had very few good days on dilantin. They added depakote but seizures are the same. Today they discontinued the Dilantin and will stay on depakote.
Reggie has been on depakote in the past and still had 3 seizures every 3 days. We chose to go back to depakote because at least he had some control and it is the treatment of choice for myoclonus and DRPLA Seizures. Miah is well controlled on depakote.

Fundal ligation.

We finally figured out what is going on with Reggie. We are at Miami Children's hospital and he has severe GERD. Reggie finally got approved for fundal ligation surgery Thursday 12/20. We believe the following symptoms with resolve after the surgery.
Pain
Crying
Reflux
Cough

Seizure cluster

Seizure cluster is not well defined. We documented a seizure Wednesday. Than Thursday Dec. 3. Exactly one week after the last cluster was a very shaky day. Friday Reggie had 2 grandmals and lots of partials. Saturday he had one Grandmal in the morning than began to recover.

Chin. Ars. 200c. We gave Reggie 3 doses Friday after his second seizure and a dose after his Saturday seizure. It does seem to allow him to recover faster

Seizure

Started the day crying. Seem to no want to be feed through the tube. He went to school and had a seizure 1:30 seizure

Seizure but happy

Reggie had one Grandmal and several partials, but he is happy and alert. Happy to see his mommy come home from a Navy trip

5 seizures over 3 days.

Reggie had a seizure cluster over Thursday and Friday. Reggie started Thursday shaky. I gave a dose of chin. Ars. 200c. Couple hours later e had his first Grandmal seizure. I'm not convinced the remedy and seizure cluster is related, but we will be watching that.
Reggie ended up having 3 Grandmal seizures on Thursday's one on Friday during the day and one Friday middle of the night.
Reggie woke up today Saturday happy and alert. Reggie is still on Dilantin 100mg. TID