Reggie did have 4 seizures today, but it might be because we started lots of stimulation. Good news. Reggie's seizures are only 30 seconds.
Started the Vecttor.
Continued on the alpha stim.
Did the turbo sonic.
Thursday, August 16, 2012
Wednesday, August 15, 2012
Another good day.
Gave about 3 doses of cicuta 200c for "almost" seizures. The remedy helped and Reggie had a good day.
Reggie is still having a lot of trouble with swallowing. We started Vitastim therapy today, which gives electrical stimulation to the swallowing muscles while he is eating. Had his first treatment today as it seemed to help.
Also started 1-2 hours of the alpastim,(cranial stimulation). Alphastim is FDA approved for anxiety, depression, and insomnia, but is being researched in neurodegenerative disorders. Bundy has been using it for a couple of months and we have notice an improvement in Bundy's ataxia.
Reggie is still having a lot of trouble with swallowing. We started Vitastim therapy today, which gives electrical stimulation to the swallowing muscles while he is eating. Had his first treatment today as it seemed to help.
Also started 1-2 hours of the alpastim,(cranial stimulation). Alphastim is FDA approved for anxiety, depression, and insomnia, but is being researched in neurodegenerative disorders. Bundy has been using it for a couple of months and we have notice an improvement in Bundy's ataxia.
Tuesday, August 14, 2012
Homeopathy
Sent a lot of videos and information to Dr. Saine. (homeopath). Major concerns are Reggie's difficult swallowing, ataxia and seizures. New remedy is cicuta 200c. Gave 2 doses of the remedy today.
Today was a really good day. :-)
Today was a really good day. :-)
Friday, August 10, 2012
Great day.
Reggie had a great day today. Yesterday he had a Grandmal seizure, but recovered in time for a good therapy session. The improvements we are noticing from the ketogenic diet are: quicker recovery, less intense seizures, and no severe clonus when weight bearing.
He is having trouble crewing and swallowing and having some acid reflux. I took him to Dr. Lang (acupuncture) today for those symptoms.
He is having trouble crewing and swallowing and having some acid reflux. I took him to Dr. Lang (acupuncture) today for those symptoms.
Tuesday, August 7, 2012
Good day / bad day
Yesterday was a good day. Today was a bad day. Coffee 200c helps him sleep at night. Belladonna helps with seizures. Been giving nicinimide B6 to compensate for medication error. Consistent with 3:1 ketogenic diet. BHB 3.8. Ketones in urine large.
Friday, August 3, 2012
3:1 Ketogenic started
Yesterday reggie started with moderate seizure activity in the morning. Gave one dose of belladonna 200c. The afternoon he began to improve a little and ate some food. Slept well last night, but he didn't want to eat this morning and was very shaky.
Got word back from Pilar (nurse practitioner in charge of his diet) and she allowed him to go up to the 3:1 keto ratio starting today. 3:1 is the therapeutic diet ratio and should produce some seizure control.
Reggie has had one Grandmal seizure today. Gave belladonna 200c
Got word back from Pilar (nurse practitioner in charge of his diet) and she allowed him to go up to the 3:1 keto ratio starting today. 3:1 is the therapeutic diet ratio and should produce some seizure control.
Reggie has had one Grandmal seizure today. Gave belladonna 200c
Wednesday, August 1, 2012
Finally a good day
Reggie is having a great day. Went to the pool. Ate all his food by mouth. Did excellent in therapy. Yesterday started out bad again. gave 5 consecutive doses of Oen. C. 200c. Didn't improve at all. I switched to belladonna 200c x5 doses and he started to improve.
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