Begining of Nov we focused on moving. Once in Colorado I weaned Reggie off all his pharmaceutical anticonvulsant. Started CW cannabis oil Nov22. I had to be very agressive with increasing the dose of cannabis oil and started to see improvement at 2mg/lb/day. Details beliw
0.75mg/lb/day=0.2ml of 100mg/ml TID.
Day 1 he was wided eyed
Day 2 he had a good day no seizures. By the evening he was crying in discomfort. Had to give motrin twice.
Day 3. 2 grandmal seizures by 9am gave an additional 0.2ml after second seizure. I gave him vitamins that I had been withholding. NAC 900mg BID. Vitamin D 5000u. Cod liver oil and his 2pm 0.2ml of cannabis oil. He seems to recover. Today Reggie recieved a total of 0.8ml = 80mg about 1mg/lb. Our plan starting tomorrow. 0.3am. 0.2pm 0.3hs. Which keeps us at 1mg/lb
LITTLE TO NO SLEEP
Day 4 was a great day even posted a video on FB of reggie sitting up on the mat.
LITTLE TO NO SLEEP
Day 5 no seizure activity but agitation, might be due to constipation. Treated constipation and hydrated him. Talked with Heather (Zaki mom, seizure free) talked about CBD in low dose can be stimulating, but in high dose is sedating. Since Miah is doing well with 1/3 dose in morning and 2\3 at night we will try that with Reggie. We will keep the same daily dose at this point just do 0.3ml/am. 0.5ml (100mg/ml solution) before bed.
Gave 0.5ml HS. He did sleep on and off, but he was uncomfortable. Continued to treat constipation.
Day 6. Thanksgiving. Finally had a large BM. He is still irritable and having little seizures. One grandmal seizure. Increased CBD again.
Day 7. One grandmal. Increased again. Now on 0.5ml TID of 100mg/ml solution. Thats 2mg/lb/day
Day 8. Nov. 30. 2013. Amazing day. Posted a video on FB. Eating mashed potatoes. Trying to walk. Very alert all day.
