Chininum arsenica

After stabilizing medically we started chin. Ars. 200c homeopathy. Gave first dose Tuesday Nov. 27. Cough is a little better. Drooling is a little worse today but it could be because we gave Ativan yesterday for a dental appointment.

Dilantin

When Dilantin is given IV as fosphenytoin it seems to control Reggie seizures. We are having trouble keeping his levels up giving through the Gtube. As of yesterday he is only on Dilantin and they increased it to 100mg TID. Dr. Pearlmutter says that the clobazam Also works on CYP2D6 and could have been decreasing Reggie Dilantin level. The clobazam was also causing excessive drooling. Reggie still had 2 GM and several partials today.

Dilantin

Reggie on Dilantin 100mg. BID and Onfi 20mg. BID. He doesn't really want to walk or bare weight. He is drooling a lot. He is still coughing and doesn't want to eat by mouth He is awake and happy, just not doing anything. He is having little seizure activity. The plan at this point is to give his brain a rest on this medication and see if his functioning improves.

Home from hospital

Reggie is not 100% yet, but happy to be home. His Physical therapist was at the house early this morning to get him moving again. He is currently on Dilantin 100mg. BID and clobazam 20mg. BID and 10mg PRN. Hoping and praying this is the magic combination that stops his seizures.

No lacto. Bacillus

Reggie started having stomach problems. After much differential diagnosis we realized the lacto bacillus was causing severe gas

Keppra increased GM

Keppra started in the hospital. He had 9 Grandmal seizures and numerous small seizures. As soon as keppra was stopped so did the increase in seizures. Will never use keppra again

Miami Children's hospital

Reggie came Monday with a bad cough not responding to antibiotics. Today is day 4 and the cough is not better. The good thing is we are adjusting the ketogenic diet and trying new medication combos to control his seizures. It looks like we will be here for awhile.

3 Grandmal seizures

Today (day 5) Reggie had 3 Grandmal seizures and slept all day. He had 4 days with no Grandmal seizures. Saturday day 4 was a little shaky. Reggie is still on Onfi 10mg. BID

Day 3 no seizure.

Today is day 3 with no seizure activity on the Onfi 10mg. BID. His teacher said he slept at school most of the day, but that's good compared to seizure clusters.