Onfi

I never started Onfi daily. I was trying to do only every 3 days. But Reggie was still having same amount of seizures. Today we will start Onfi 10mg every am and possibly 2-3 times /day. I realized I can handle Reggie's disabilities but his seizures cause a significant hardship; emotionally, physically, and financially. Please pray we can stop the seizures.

Onfi or VECTTOR

Reggie cycle has changed. Not really having good days. I don't know If it is from the Onfi (every 3 days) or doing the VECTTOR daily. Thursday morning Reggie had a grandmal seizure first thing in the morning. I gave him Onfi 10mg and did the VECTTOR machine to try to increase his ketones and decrease his glucose. He had a great day at school. Friday he woke a little shaky but I did not give him the Onfi because it was suppose to be a good day for him. I did do the VECTTOR machine. All day was shaky. Today Saturday he is shaky still. I did VECTTOR again today and Almost had a Grandmal several times.

I have talked with doctor Saine and Reggie is on lycopodium 200c which is directed toward his cough, but should help his seizures and function.

Onfi

Just when we think Reggie is on a clear schedule he has a seizure on what is suppose to be a good day. We have been giving him onfi on his bad days and he has less Grandmal seizures. But today was suppose to be a good day. Today we wills start with daily Onfi 10mg. I am vet reluctant to use this med but I have to give it a fair try.

HBOT

Thanks to Valery Cabrera Reggie gets Hyperbaric Oxygen Therapy (HBOT) at home. HBOT increases oxygenation to his brain to promote healing and increases stem cell production. Our plan is to put Reggie in the chamber on the days he has a seizure.

We stopped using the VECTTOR temporarily, because it changed his seizure schedule.

Homeopathy put him back on Nux Vomica

Medication. A new benzodiazepine derivative ONFI will be used PRN for seizures.

EEG biofeedback at least 3 times per week.