2 bad/2 good days weight loss

There has been a consistent decrease in seizures. On his bad days he only had a total of 2 Grandmal seizures, but had a couple partial seizures. Ketone levels are still pretty low. Ranging from 0.9 in the AM to 2.9 in PM. The Ketogenic Nurse Practitioner add 5grams of MCT oil at night to see if we can prevent the drop in ketones. I will test his ketones tomorrow morning.

I will email the Practitioner tomorrow to share ketone level and the fact he his loosing weight. We weighted him today and he is down to 63lbs.

Chewing and swallowing is improving.

We are continuing on the cic 200c homeopathic remedy, doing Alpha stim as often as possible.

I am concerned about the rash that has appeared for the second time on his back. I will talk to chiropractor, acupuncturist and homeopath about that Monday.

Great day.

Reggie started his day off a little tired, But ended with a good Physical and Occupational therapy session and a ride on his favorite horse.

We are using the Alpastim several hours a day, it really seems to be helping.

We continue with his homeopathic remedy at least once a day. The Cic 200c has helped with seizures and overall ataxia.

We stopped using the Vitastim. The main reason we stopped using it was because Reggie's difficulty swallowing is due to ataxia not weak muscles in his neck. The Vitastim was also difficult to use. We will reconsider later

Ketones are average. 8:30pm immediately after last meal his betahydroxy blood level was 2.6. Function is good.

VECTTOR

The last 4 days has not been good, Then yesterday and today were seizure days. Ketone levels were low. After some investigating we realized that the VECTTOR stimulation protocol could be inadvertently decreasing Reggie ketones, thereby increasing seizures. We will be taking a 2 week break from the VECTTOR, while Dr Rhodes comes up with a protocol to increase ketones. In the meantime we will continue his homeopathic remedy, turbo sonic , Alphastim, Vitastim, PT/OT and his special school.

4 seizures today.

Reggie did have 4 seizures today, but it might be because we started lots of stimulation. Good news. Reggie's seizures are only 30 seconds.

Started the Vecttor.

Continued on the alpha stim.

Did the turbo sonic.

Another good day.

Gave about 3 doses of cicuta 200c for "almost" seizures. The remedy helped and Reggie had a good day.

Reggie is still having a lot of trouble with swallowing. We started Vitastim therapy today, which gives electrical stimulation to the swallowing muscles while he is eating. Had his first treatment today as it seemed to help.

Also started 1-2 hours of the alpastim,(cranial stimulation). Alphastim is FDA approved for anxiety, depression, and insomnia, but is being researched in neurodegenerative disorders. Bundy has been using it for a couple of months and we have notice an improvement in Bundy's ataxia.

Homeopathy

Sent a lot of videos and information to Dr. Saine. (homeopath). Major concerns are Reggie's difficult swallowing, ataxia and seizures. New remedy is cicuta 200c. Gave 2 doses of the remedy today.

Today was a really good day. :-)

Great day.

Reggie had a great day today. Yesterday he had a Grandmal seizure, but recovered in time for a good therapy session. The improvements we are noticing from the ketogenic diet are: quicker recovery, less intense seizures, and no severe clonus when weight bearing.

He is having trouble crewing and swallowing and having some acid reflux. I took him to Dr. Lang (acupuncture) today for those symptoms.

Good day / bad day

Yesterday was a good day. Today was a bad day. Coffee 200c helps him sleep at night. Belladonna helps with seizures. Been giving nicinimide B6 to compensate for medication error. Consistent with 3:1 ketogenic diet. BHB 3.8. Ketones in urine large.

3:1 Ketogenic started

Yesterday reggie started with moderate seizure activity in the morning. Gave one dose of belladonna 200c. The afternoon he began to improve a little and ate some food. Slept well last night, but he didn't want to eat this morning and was very shaky.

Got word back from Pilar (nurse practitioner in charge of his diet) and she allowed him to go up to the 3:1 keto ratio starting today. 3:1 is the therapeutic diet ratio and should produce some seizure control.

Reggie has had one Grandmal seizure today. Gave belladonna 200c

Finally a good day

Reggie is having a great day. Went to the pool. Ate all his food by mouth. Did excellent in therapy. Yesterday started out bad again. gave 5 consecutive doses of Oen. C. 200c. Didn't improve at all. I switched to belladonna 200c x5 doses and he started to improve.