Grandmal seizure

After Over 24 hours of nonstop monoclonic seizures, I began giving his homeopathic remedy every 15 minutes. Oenathe crocata 200c. After the fifth dose he had a Grandmal seizure. Reggie also has diarrhea and a low grade fever 99 axillary. The 2nd. Grandmal seizure at 3:45.

Couple new things to document today. About 30 seconds after some Grandmal seizures he startle/fearfully screams very loud. He also sometimes has decererbrate posturing after Grandmal seizures.

Also something. Very new in the last 24 hours is Reggie has been sweating. He abnormally never use to sweat.

Also I have been applying coconut oil to his rash and it has improved drastically.

Bad day.

Something is changing. Reggie has been having hard monoclonic jerks all day, but he is very alert. The alertness is good, but he gets upset at the jerking. His betahydroxy (BOH) blood ketone level was 2.0 today. He is jerking so hard I don't know If he will get to sleep.

After about 15 minutes of sun today Reggie broke out in a rash on his back. The rash looks like shingles. I put coconut oil and eucalyptus and it appears to be drying up.

6 Grandmal seizure

Reggie has had 4 bad days. 2 really bad with 6 grandmals and multiple monoclonic seizures. He is at Miami Children's Hospital. Started the ketogenic 2:1 Monday and today has a beta hydroxy (bl. Ketone level) of 1.6. They won't let us feed him by mouth until he passes a swallow test. Which has been rescheduled twice.

Checked in at Miami Children's

Little disappointed. They won't be officially starting the diet till tomorrow. Lots of tests to make sure his body can handle the diet. Also tomorrow they will do a video fluoroscope to see if he is aspirating his food. If he is, he will have to be 100% tube feed. That would be depressing for us, and upsetting for Reggie who enjoys eating.

Good day.

Reggie had a great day today at school and therapy. Yesterday we had our appointment with the ketogenic team at Miami Children's Hospital. Reggie will be admitted Monday for 3-5 days to start the diet. They have already started decreasing his meds. Down on the topamax every 3 days.

5 Grandmal seizures.

Very bad day. 5 Grandmal seizures. Unresponsive all day. Gave several remedies and tried to stay on high fat. :-(

2 good days

Reggie is staying on the same pattern. He had a really good weekend. Swimming and playing. Good appetite and no seizures. In the middle of the night, he started with seizure activity. Started giving. Oenathe crocata 200c. He also woke this morning pretty shaky. Gave a total of 5 doses OC 200c and he did go to school, but he wasn't so good

2 not so good days, 1 GM seizure

Reggie did not function much today or yesterday. Sleeping and lots of small seizures, as well as A couple partial seizures. Yesterday he had a Grandmal seizure at 4:30pm. Increased topamax to 125mg BID yesterday. Oenanthe crocata 200c started this morning. X5 doses. After NFP therapy he began to feel better.

2 good days

Reggie has had 2 good days. However, last night he was VERY restless and couldn't go to sleep. gave plum 50mx3 doses. At 2am Reggie was still not asleep. Gave homeopathic coffee 200c and I believe he fell asleep. Was good at school and therapy today. :-).

Dr. Romero (chiropractor), Dr. Pearlmutter (famous neurologist in Naples), Dr. Lewis Ph.D (neuro-degenerative specialist in Boston) all encouraged giving the ketogenic diet another try. We did try the modified Atkins 2 years ago, including trying to do the ketogenic without success. Last time we tried it we did not do it 100% and we didn't have the gtube, so seizure days he got no food and lost weight. If you have the time, I encourage you to watch the movie "first do no harm". It is on Netflix and YouTube.

3 more Grandmal seizures

Gave Cuprum 1m x2 after first seizure, but he still had second seizure. After third seizure started belladonna 200c x8. He did eat dinner and interacted.

2 Grandmal seizures

Reggie had 2 grandmals today. Gave plum 50 x2 after the first but he still had second seizure

Vomiting

Well, my nursing students handled Reggie vomiting everywhere during therapy. Reggie has had an upset stomach most of the day with reflux. Entered symptoms in abc homeopathy and gave carboneum 200c. X5 doses. For heartburn, coughs from heartburn, and better after vomitting.
After thinking about it. The ginger/beet tea could have irritated his GERD
Otherwise it was a pretty good day. Except lots of little seizures. Gave cuprum 1m around 4pm to see if it would decrease the little seizures, but it didn't seem to make a big difference.

Pretty good today

Reggie went to school today, came home, and worked really hard in Physical Therapy. He wasn't eating well and having trouble with aspiration so we took him to Dr. Lang and Dr. Lee MD, and acupuncture physicians. After acupuncture treatment he came home and ate dinner. Prescription was to boil 3 radishes and one slice of ginger for 5 minutes and give to Reggie. Also Reggie fell and bumped his head. Gave arnica 200c

Grandmal seizure

Reggie woke up shaky but we thought he was going to be ok. Took him out shopping and he had a Grandmal seizure. Slept the rest if the day. Interacted a little, but very shaky. After Therapy Reggie was very shaky, almost had another seizure. Gave cuprum 1m and put him to bed.

Grandmal seizure

Reggie woke up very shaky today and ended up having a Grandmal seizure. After the first seizure we gave Plum 50m every hour x 4. By 3:30pm He was able to participate in Physical and Occupational therapy and he ate dinner.

2 good days. Now sleeping.

Reggie had a great weekend. Swimming, 4-wheeling, and enjoying company. He had trouble going to sleep last night so I gave Plum 50m. I'm not sure it helped. Bundy said he was still awake at 2am. When we tried to wake Reggie he was very irritable and crying. Took him to Dr. Romero (chiropractor), who functions as his primary care provider. Dr. Romero said nothing was testing. No evidence of anything wrong. Did his weekly adjustment and told us It was on to push him. Physical therapist came and tried to work him out but Reggie would not wake up. We will increase his tomapax tonight to 75mg BID for 5 days.