Grandmal seizure

Reggie slept well last night but had a Grandmal seizure at 8am. I am waiting on a call back from Dr Naqvi (neurologist) in the meantime I gave an extra dose of Topamax. I spoke with Dr. Saine (homeopath) yesterday and his recommendation is to give Plum 50 every time he begins to not show improvement. So I also have a plum 50.

Physical/Occupational Therapy

Reggie started his intensive therapy program this week. The therapist are a great match for Reggie. They are very knowledgeable and willing to do innovative things. The PT is also a manual therapist which is very important for Reggie's recovery. Reggie is still seizure free with the start of the Topamax, but not systemically back to himself. Still fighting the cough and lethargy. PT documented hypertonic with cerebral palsy posturing. And delay in initiation of movement similar to Parkinson's disease. Both observations will be helpful for the homeopath.

Seizure free

Reggie has not had a seizure since starting Topamax, but he is still not himself. Not eating well, sleeping a lot, still coughing, Very stiff, and keeping his torso and legs straight while co reacting arms. Saturday I gave a couple doses of phosphorus 200c which seems to help with swallowing and coughing. Saturday night I gave plum. Met. 50m. Because he was very agitated And couldn't get to sleep. We are taking Reggie to Dr. Romero the chiropractor today and will speak with the homeopath again Wednesday.

Topamax

Today was another bad day. Ended uphavering 3 Grandmal seizures despite giving extra Neurontin. Dr. Naqvi said Neurotin usually doesn't work for seizures, but I wanted to try it anyway. After speaking with Sr. Naqvi's nurse practitioner we are discontinuing the neurontin and starting Topamax. Reggie was on Topamax 5 years ago and it was working. I choose to take him off to try alternative approaches. If Topamax doesn't work the next medication is clozabam. A new drug just recently approved for Lennox-gastuat by the FDA. the doctor will have to jump through some hoops to get it for Reggie, but that is the next step.

Also spoke with Dr. Saine. Homeopathy. We will continue the phosphorus until the cough is gone. And start Plum 50m. Gave one dose of Plum 50m

Grandmal seizure

Yesterday there were some improvements in Reggie's cough, chewing and swallowing. However, seizure activity was very bad. He was having partial seizures non-stop all day. We continued with phosphorus 30c every two hours alternating with cuprum 1m for seizures. He went to sleep ok but woke at 4am with partial seizures. Gave cuprum at 4am. And 7:30am. He still had a Grandmal 8am.

Homeopathy

Talked with Dr. Saine today. Presented Reggie having not completely recovered from his pneumonia. Coughing, weak, ataxia and dysphasia significantly worse. Reggie has even been aspirating on certain foods. Dr. Saine found it significant that Reggie had all that severe gas from cabbage. Dr. Says there is a whole group of remedies sensitive to cabbage. Started Phosphorus 30c every 2 hours. For 36 hours. Reggie has had his first couple doses and he is already feeling better.

Reggie trying to enjoy vacation.

Reggie tried really hard to make Father's Day and Bundy birthday good days. No seizure activity and enjoying the Disney parks. Riding roller coasters and smiling. However, he is still pretty weak and VERY ataxic. I have noticed a significant increase in ataxia recently. Last night gave plum 20m and gave cuprum 1m this morning. He has been upset about something.

5 really bad seizures.

Today we were traveling to Orlando for our family vacation. Reggie had a really bad day. He started last night with partial seizures from 2:30am. I gave him a cuprum 1m and put the Alpha-Stim cranial electro therapy stimulation on him 1hz for 2 hours. He had a long Grandmal seizure and stopped breathing while on the device. He has since had 4 more bad seizures.

Good 3 days.

Reggie has been pretty good the last 3 days. No seizures, but we did have to keep him on antibiotics because his lung are still fighting the pneumonia.

6 seizures

Reggie has recovered from the pneumonia, but today is a bad day. He has had 6 seizures.

PT/OT evaluation

Today Reggie is feeling a little better, bur he is not 100% yet. I am very happy that we finally found a way to get intensive Physical and Occupational therapy with New Heights Rehab. I was really impressed with their treatment plan for Reggie and they are open to trying new things.

Pneumonia

Dr. Machado called at 10pm last night to say that Even though Reggie Chest X-ray was normal his microplasim was positive for pneumonia. Started Azithromycin 400mg. Loading dose. 200mg /day for 3 days. He is feeling better today still not eating. No defer and spent some time awake

Sick and seizures.

Reggie has been sick for almost a week. Not eating. Fever. Upper resp symptoms. He also had 2 grandmal seizures today

Miami children's hospital

Reggie is trying to smile as we wait for labs and chest x ray at Miami children's. Yesterday I came home to Reggie having diminished bilateral lung sounds and resting O2 sat 90%. After 3 albuterol treatments he had much better airflow and 98% O2, he slept through the night. Woke this morNing with bilateral adventitious sounds. Gave another albuterol treatment and took to pediatrician. Beta flu negative and we are now at MCH for Chest x ray and labs

Grandmal seizure

Disappointed. Third day having a Grandmal seizure. Yesterday he slept most of the day. Had the seizure 5:30am

Grandmal seizure

Reggie had a Grandmal seizure last night and lots of sleeping today.

Grandmal seizure

Reggie had a Grandmal seizure In his sleep last night. He woke this morning without seizure activity, but I think he is getting sick. He stayed home from school yesterday and today to try and rest it off.