Grandmal seizure

His day had been improving. He went to sleep around 9pm. Had a Grandmal seizure at 12:30am. :-(

Pancreatitis/gastritis/Ulcer

The last 30 hours has been challenging. Reggie started crying since 1am saturday morning. It appears to be pain like when the doctor thought he was recovering from pancreatitis. (amylase 137) Yesterday gave Pepcid AC he was feeling better. At night he wouldn't sleep crying. Gave Prevacid 30mg. Went to sleep. He woke up ok. Ate a BIG breakfast. Now he has started crying again. Without diagnostic testing appears to be GI. Deciding what to do???

Reggie on his 5th piece of pizza

Today is a good day. Reggie went to school. He is home doing his electrical stim machine. (VECTOR) and eating lots of Gluten Free Pizza. No NFP therapy tonight. Many of his Reggie addicts have completed nursing school and I am attending their pinning ceremony. Today Reggie will get a total of 4 doses of Plum Met. 20m.

Talked with Dr Andre Saine.

Dr. Saine is Reggie's "internationally known" homeopathic doctor in Montreal Canada. He still thinks Plum met is Reggie constitutional remedy. His prescription is to take plum met 20m every four hours while awake. We are starting it this afternoon. Today was a recovering day. Reggie slept a lot. He did eat and interact.

3 good days

Reggie had 3 good days. Friday Saturday and Sunday. Sunday afternoon he started with lots of little seizures.

Recovering

Reggie had a rough day yesterday and he is still recovering. No seizures today. He slept most of the day. Tried to give a Plum met 20 to get him functioning, it didn't seem to help. But did wake up to eat in the afternoon. Right now, He is watching TV with dad while on his electric stim machine.

Had to start neurontin

Well today was a complete wash. Even after 3 doses of Plum met 20m Reggie had 5 grandmal seizures, and lots of seizure activity. Since decreasing the lamictal to 100mg twice a day his seizure pattern has returned to 3-6 seizures every 3rd day. Obviously that is unacceptable so we started neurontin (gabapinton) 300mg three times a day. I am sure after therapy and a good night sleep, Reggie will be good to go.

Milk :-(

I gave him raw milk today and he had green loose stool. Raw milk advocates say it is normal to have infant type stool. Reggie didn't eat any solid food today. I will try again on a better day to be sure to get an accurate assessment of his sensitivity.

Started ElectricStim

Yesterday he woke up very shaky, probably due to the fact he didn't get to sleep until 2am. So we started with one dose of Plum. Met 10m, and he had a GREAT day. In the evening we started Dr Rhodes ElectricStim machine called the VECTOR. The VECTOR stimulates points on his body to produce neuropeptides and ultimately decreases oxidative stress. He slept well last night, but he woke with a seizure this morning :-(

Pancreatitis

Dr Naqvi called, Reggie's amylase was 137 after decreasing the Lamictal to 100mg twice a day. So it is likely that his previous abdominal pain was pancreatitis from the Lamictal. Reggie has lost 2 pounds in the last couple weeks. Which Could also be due to the pancreatitis or from removing Raw milk feedings from his diet.

Homeopathy helped

I gave Reggie Plum. Met. 10m. Every hour. Times 3 doses. He slept for a couple hours and woke up great. Kayla put him on the treadmill and he is eating good. Outside playing now.

HELLO REGGIE ADDICTS

Finally a place for you to keep up with the roller coaster of Reggie's life. He loves you all and appreciates all you do for him. Right now we are waiting on Dr. Naqvi (neurologist) to call us back about pancreatitis and what to do with Meds. He is down to 100mg of Lamictal but has been having a lot of seizure activity.